Genetic Testing of Minors for Adult-Onset Conditions

GENETIC TESTING OF MINORS FOR ADULT-ONSET CONDITIONS: The National Society of Genetic Counselors (NSGC) encourages deferring predictive genetic testing of minors for adult-onset conditions whenever possible.  The decision to test, when the test is not anticipated to impact medical management in the near term, should be made carefully and on a case-by-case basis.  Deferring predictive genetic testing allows individuals to choose for themselves as adults, taking into account their own circumstances, preferences, and beliefs.  NSGC strongly recommends that families facing these decisions meet with a certified genetic counselor or medical geneticist to review the clinical and personal implications of testing. (Adopted 2012)

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