Blood Spot Storage and Use

The National Society of Genetic Counselors supports newborn screening laboratories' storage and use of blood spot samples, and transparent policies to regulate these activities.  Dried blood spots are valuable resources that significantly contribute to lifesaving newborn screening and advance public health. They are critical for program quality assurance and improvement, new test development, and institutional review board-approved research.  Parents should be informed of any available options regarding blood spot storage and use, including the ability to destroy the blood spot samples after testing is completed, the ability to restrict subsequent uses of the blood spots, and/or the opportunity to consent to research use of the stored blood spots. (December 2017)

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