Rare Diseases: Genetic Counselor and Patient Experiences

Online Courses

In this course, genetic counselors will discuss common threads from a variety of unique genetic counseling cases and the lessons from these cases that can be applied to other genetic counseling sessions. Each module of this course will include a genetic counselor expert who will present a review of a rare disease, provide insight on current issues surrounding the condition and discuss the testing and counseling process for the rare disease. Genetic counselors will learn how these experts have taken unique situations and expanded their knowledge of specific disease but more importantly how these lessons can be applied across the field of genetic counseling. Additionally, each module includes a patient perspective, in which a patient will speak to his/her experience with the conditions and the counseling process.

Course Learning Objectives:

  1. Evaluate features and diagnosis of a specific condition
  2. Discuss the current understanding of the condition as well as future objectives in treatment and management
  3. Discuss how to apply lessons learned from a genetic counseling session to other sessions
  4. Illustrate patient experiences with a particular condition.

Purchase Information

Purchase Type Price
NSGC Member:  $75
Non-member:  $100
Student Member: $40
Student Non-member:  $50


Click the button below to purchase this course. If no button appears, please log in or create a guest account to purchase this product. Contact nsgc@nsgc.org for access to student member pricing.


Bundle Your Courses to Save More!

When you bundle your 2017 courses together and purchase two at the same time, you will save 10% on the total purchase, allowing you get to more learning opportunities and education for less! Visit the 2017 Online Course page to learn more about bundle pricing. 

Continuing Education

The National Society of Genetic Counselors (NSGC) has been authorized to offer up to 0.37 CEUs or 3.76 Category 1 Contact Hours for the activity: Rare Diseases: Genetic Counselor and Patient Experiences online course through 11/16/2019. The American Board of Genetic Counseling (ABGC) will accept CEUs earned through this program for the purposes of genetic counselor certification and recertification. Genetic counselors must be certified at the time of the activity in order for credits to count towards recertification

Recent Stories
Evidenced-based Practice: What It Is and Why It Matters

Direct-to-Consumer Genetic Testing 201: Technology, Complex Cases and Resources

New Frontiers in Genetic Technology

NSGC Executive Office   |   330 North Wabash Avenue, Suite 2000, Chicago, IL 60611   |   312.321.6834   |   nsgc@nsgc.org
© 2018 National Society of Genetic Counselors   |   Privacy Policy   |   Disclaimer   |   Terms and Conditions   |   DMCA Procedures for Removal