Critical funds will provide All of Us Research Program participants access to genetics experts to interpret personalized health information
The National Society of Genetic Counselors (NSGC) praises the National Institutes of Health (NIH) for awarding $4.6 million in initial funding to establish a genetic counseling resource for the All of Us Research Program. The grant ensures the 1 million All of Us participants will have access to medical professionals with advanced training in medical genetics and counseling to help them understand the implications of genomic test results on their health and integrate these results into their lives and the lives of their families.
The funding was awarded to Color, a health tech company specializing in genomics. NSGC President Amy Sturm, MS, CGC, LGC, will lead the steering committee to ensure the delivery of top-quality genetic counseling, collaboration with the genetic counseling community and training of future genetic counselors.
“With advancements in genetic and genomic testing, individuals and healthcare providers need experts like genetic counselors now more than ever – and the profession is responding with tremendous growth,” said Sturm. “The funds awarded will help set a gold standard of care in the delivery of genomic information to include a genetic counselor as a part of the healthcare team to guide and support patients seeking more information about their genetics. It’s a privilege to have been offered the responsibility to chair the All of Us genetic counseling resource steering committee and I’m excited for the future.”
"We’re honored that Color has been selected as the All of Us Research program Genetic Counseling Resource,” said Lauren Ryan, M.S., LCGC, head of clinical counseling services, Color. “As genetic testing and counseling plays a larger role in population health, the All of Us Research program can pioneer how to deliver results responsibly to a large, diverse population. We are committed to partnering with local genetic counselors and training programs around the US to ensure that study participants receive the greatest benefit possible from their experience and trainees can take advantage of this opportunity for professional development."
Genetic testing is only one piece of the puzzle when determining one’s risk for developing a disease. Genetic counselors can guide and support patients seeking more information about their genetic health, help interpret test results and put those results into the context of individuals’ personal and family histories. Anyone looking for more information can find a genetic counselor in their area by using NSGC’s Find a Genetic Counselor tool.
About the National Society of Genetic Counselors
NSGC is the leading voice, authority and advocate for the genetic counseling profession. Membership represents more than 3,900 masters-level health professionals, who are committed to ensuring that the public has access to genetic counseling and genetic testing. Visit www.NSGC.org.