policy & Publications
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This newly updated booklet offers a brief review of the genetics of Cystic Fibrosis, including information for patients and families regarding testing, prenatal diagnosis and genetic counseling for cystic fibrosis. ©2013.
The Spanish version of the child-friendly guide, "Cardio What?" helps children understand their own and/or their family member's diagnosis of cardiomyopathy. It addresses information about inherited forms of cardiomyopathy that cardiologists, genetic counselors or other health professionals may have discussed. Booklet contains basic information, great illustrations, and a list of resources. ©2005
Prenatal Screening and Testing from Chromosome Conditions
This online prenatal testing information tool published by Lettercase provides the contents found in Lettercase's “Prenatal Screening and Testing for Chromosome Conditions” pamphlet, as well as links to additional resources and more detailed information about chromosome conditions. “Prenatal Screening and Testing for Chromosome Conditions” is also available as a printed pamphlet in the Lettercase Bookstore.
This pamphlet was prepared with assistance from representatives of The National Society of Genetic Counselors with funding provided by the U.S. Administration on Intellectual and Developmental Disabilities (AIDD), though no official endorsement from AIDD should be inferred.