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H.R. 3235 Organization Sign-on Letter

Our organization supports enactment of H.R. 3235, the Access to Genetic Counselor Services Act, to update Medicare law and improve access to genetic counselors for Medicare beneficiaries.  Genetic counselors are highly trained providers who support patients by providing comprehensive genetic counseling services.  Genetic counselors work as part of the medical team to facilitate communication between Medicare beneficiaries and other providers to manage health issues with a genetic component.

Genetic counselors have advanced training in medical genetics and counseling.  This specialized expertise enables genetic counselors to play a significant role in educating Medicare beneficiaries about the genetic contributions to disease and the implications for their health – both medical and psychological – and the health of family members. These highly trained professionals enable beneficiaries and other providers to consider which genetic tests may be appropriate, and how to evaluate test results.  In short, genetic counselors empower patients and providers to make informed decisions.

The services of genetic counselors are increasingly important in the era of personalized medicine.  Genetic counseling is particularly helpful for Medicare beneficiaries considering genetic testing for certain conditions affecting the elderly that have a genetic component, such as cancer, cardiovascular disease and neurology. 

Medicare law needs to be updated to provide beneficiaries direct access to the services of genetic counselors to ensure patients receive the counseling they need to make the right decisions about their care.  While Medicare currently covers genetic counseling services, the lack of direct reimbursement for genetic counselors, and arcane “incident to” rules, significantly prevent referrals to these providers.

H.R. 3235 takes a measured approach to modernize Medicare to catch up with the innovation of genetics and genomic medicine. The bill would:

  • Improve the ability of other practitioners, such as physicians, to refer patients for genetic counseling to genetic counselors under Medicare Part B.
  • Provide reimbursement to genetic counselors at 85 percent of the physician fee schedule amount.
  • Ensure that other practitioners that currently provide the service can continue to do so if the activities are within their scope of practice.

Enabling broader Medicare beneficiary access to genetic counselors will help ensure appropriate genetic testing, provide critical knowledge to beneficiaries to fully understand test results that are often complex, and further integrate genetic counselors into the healthcare team.  We expect the legislation will enhance team-based care coordination for Medicare beneficiaries, and may also save money for beneficiaries and the Medicare program.

We urge you to support this legislation to modernize and update Medicare for patients.  For additional information, please contact John Richardson, Director of Government Relations, National Society of Genetic Counselors at jrichardson@nsgc.org or 202-367-1239.

H.R. 3235 Organization Support Letter Signatories

Signatories as of October 2020

  • Access to Expanded Carrier Screening Coalition

  • ACT Genetics
  • Advocate Aurora Health
  • ALD Connect
  • Alliance of Dedicated Cancer Centers
  • AliveAndKickn
  • Ambry Genetics
  • American Board of Genetic Counseling
  • American Cancer Society
  • American Kidney Fund
  • American Neurological Association
  • American Society of Colon and Rectal Surgeons
  • American Society of Human Genetics
  • Amyloidosis Foundation
  • ARUP Laboratories
  • Association for Utah Genetic Counselors
  • Association of Community Cancer Centers
  • Association of Creatine Deficiencies
  • Augustana University
  • AXYS
  • Bay Path University
  • Baylor College of Medicine
  • Baylor College of Medicine Genetic Counseling Program
  • BillionToOne
  • Blueprint Genetics
  • Boston Children's Hospital- Neurology Foundation
  • Boston University Master's Program in Genetic Counseling
  • Boston University School of Medicine
  • Brandeis University Master's in Genetic Counseling Program
  • BRCA Advanced 101 & 102 Journal Club
  • BRCAresponder
  • Bridge the Gap - SYNGAP Education and Research Foundation
  • Brigham and Women's Hospital
  • Bright Pink
  • Cancer Support Community
  • CDH International
  • Cedars-Sinai
  • Centogene, US LLC
  • Charcot Marie Tooth Association
  • Child Neurology Foundation
  • Children's Hospital Colorado
  • Children's Specialty Group
  • Choroideremia Research Foundation
  • Cleveland Clinic
  • Colon Cancer Coalition
  • Colon Cancer Foundation
  • Color
  • Colorectal Cancer Alliance
  • Columbia University Irving Medical Center
  • Concert Genetics
  • Coriell Institute for Medical Research
  • Coriell Life Sciences
  • CPIC
  • Csnk2a1 Foundation
  • Cure Sanfilippo Foundation
  • CureDuchenne
  • Dana-Farber Cancer Institute
  • DCM Foundation
  • Digestive Disease and Surgery Institute, Cleveland Clinic
  • Down Syndrome Association of Central Ohio
  • Down Syndrome Association of Greater Cincinnati
  • Dreamsickle Kids Foundation
  • Duke University
  • Dup15q Alliance
  • Eastern Wisconsin Division of the Hospital Sisters Health System
  • Emory School of Medicine
  • Emory University
  • Empire State Hematology & Oncology Society
  • Epilepsy Foundation
  • EveryLife Foundation for Rare Diseases
  • Exceptional Lives, Inc.
  • Executive Frameworks, Ltd (The Center for Business Models in Healthcare)
  • Family Connection of SC
  • Fight Colorectal Cancer
  • Florida Association of Genetic Counselors
  • FOD Family Support Group
  • FORCE: Facing Our Risk of Cancer Empowered
  • FSHD Society
  • Fulgent Genetics
  • Geisinger
  • GeneDx, Inc.
  • GeneMatters
  • Genetic Alliance
  • Genetic Support Foundation
  • Genome Medical
  • GenomeSmart Inc.
  • Genomind
  • George Washington University MFA
  • Georgia Association of Genetic Counselors
  • Gibbs Cancer Center & Research Institute
  • Global Genes
  • Graduate School of Public Health, University of Pittsburgh
  • Greenwood Genetic Center
  • Grey Genetics
  • Gundersen Health System
  • Hawaii Society of Clinical Oncology
  • Hawkeye Area Down Syndrome Association (HADSA)
  • HCU Network America
  • Heart Rhythm Society
  • Hearts For Ezra
  • Hereditary Diffuse Gastric Cancer Advocacy
  • Hereditary Neuropathy Foundation
  • Hospital Sisters Health System EWD
  • Human Genetics Association of New Jersey
  • Huntington's Disease Society of America
  • Huntington's Disease Youth Organization (HDYO)
  • Illinois Society of Genetic Professionals
  • Illumina
  • Indiana Hemophilia and Thrombosis Center
  • Indiana Network of Genetic Counselors
  • Indiana State University
  • InformedDNA
  • InherRET, Inc.
  • Intelliger Consulting
  • Intermountain Healthcare- Precision Genomics
  • International Foundation for CDKL5 Research
  • International Network for Fatty Acid Oxidation Research and Management (INFORM)
  • International WAGR Syndrome Association
  • Invitae
  • Iowa Neurological Association
  • IU Health
  • Jewish Genetic Disease Consortium
  • Johns Hopkins University
  • Jordan's Guardian Angels
  • JScreen
  • KCNQ2 Cure Alliance
  • Keck Graduate Institute
  • Kennedy Krieger Institute
  • Laboratory Corporation of America Holdings
  • Lipodystrophy United
  • LIU Post GCGP
  • Long Island University
  • Long Island University Post
  • Lynch Syndrome International
  • Maryland and DC Society of Genetic Counselors
  • Marshfield Clinic
  • Massachusetts General Hospital
  • M-CM Network
  • MedAnswers Inc.
  • Medical College of Wisconsin
  • Memorial Care
  • Memorial Sloan Kettering Cancer Center
  • MercyOne Des Moines Medical Center
  • Metis Genetics, LLC
  • Miami Valley Down Syndrome Association
  • Michael's Mission
  • Michigan Association of Genetic Counselors
  • Michigan Medicine
  • Mickie's Miracles
  • Minnesota Genetic Counselors Association
  • Missouri Oncology Society
  • Moffitt Cancer Center
  • My Gene Counsel
  • My Gene Team
  • Myriad Genetics, Inc.
  • Natera
  • National Ataxia Foundation
  • National Down Syndrome Society
  • National PKU News
  • Nationwide Children's Hospital
  • New Hope Fertility Center
  • New York State Genetics Task Force
  • NGLY1.org
  • No Stomach for Cancer
  • North Carolina Medical Genetics Association
  • Northwestern University
  • Norton & Elaine Sarnoff Center for Jewish Genetics (Jewish United Fund)
  • NothingPink
  • Ohio Association of Genetic Counselors
  • OhioHealth
  • ORM Fertility
  • Osteogenesis Imperfecta Foundation
  • Pacific Reproductive Genetic Counseling
  • Parent Project Muscular Dystrophy (PPMD)
  • Parents and Researchers Interested in Smith-Magenis Syndrome (PRISMS)
  • Partners HealthCare
  • Pathways for Rare and Orphan Studies
  • Penn Medicine Basser Center
  • Penn State Health
  • Pennsylvania Association of Genetic Counselors
  • Perinatal Quality Foundation
  • Personalized Medicine Coalition
  • PharmaGKB
  • Phelan-McDermid Syndrome Foundation
  • Pheo Para Alliance
  • Piedmont Healthcare, Inc.
  • PLUGS (Patient-centered Laboratory Utilization Guidance Services)
  • PlumeCare, LLC
  • Prader-Willi Syndrome Association (USA)
  • PreventionGenetics
  • Prisma Health Upstate Cancer Institute
  • Progenity, Inc.
  • Providence St. Joseph Health
  • PXE International
  • Quest Diagnostics
  • Rady Children's Hospital- San Diego
  • Rare New England, Inc.
  • Raymond Foundation, Inc.
  • Regional Obstetrical Consultants
  • Remember The Girls
  • Rocky Mountain Cancer Centers
  • Rutgers Cancer Institute of New Jersey
  • Rutgers, the State University of New Jersey
  • Sanford Health
  • Sema4
  • SERGG
  • Sharsheret
  • Sickle Cell Disease Association of America, Inc.
  • Society for Maternal-Fetal Medicine
  • South Carolina Chapter of the American Academy of Pediatrics
  • South Carolina Oncology Society
  • Southeast Nebraska Cancer Center
  • Southern California Genetic Counselors
  • Spectrum Health
  • St. Luke's Health System
  • Sudden Arrhythmia Death Syndromes (SADS) Foundation
  • Sutter Health
  • Swedish Cancer Institute
  • Tennessee Genetic Counselor Association
  • Texas Society of Genetic Counselors
  • The Collaborative Group of the Americas on Inherited Gastrointestinal Cancers
  • The Familial Hypercholesterolemia Foundation
  • The Ohio State University Genetic Counseling Graduate Program
  • The Ohio State University James Cancer Hospital and Solove Institute
  • The University of Arizona Cancer Center at Dignity Health St. Joseph's
  • The University of Pennsylvania Perelman School of Medicine Masters in Genetic Counseling Program
  • The Up Side of Downs of Northeast Ohio
  • The US Oncology Network
  • The US Oncology Network GREAT Program
  • The Women's Hospital
  • ThinkGenetic Foundation
  • Tuberous Sclerosis Alliance
  • UC Davis Comprehensive Cancer Center
  • UCLA Health
  • United Leukodystrophy Foundation
  • University of Alabama at Birmingham Genetic Counseling Training Program
  • University of Arkansas for Medical Science Genetic Counseling Graduate Program
  • University of California San Francisco
  • University of Iowa Health Care
  • University of Kansas Cancer Center
  • University of Kentucky Markey Cancer Center
  • University of Maryland Master's in Genetic Counseling Program
  • University of Maryland School of Medicine
  • University of Miami Miller School of Medicine
  • University of Michigan Genetic Counseling Program
  • University of Minnesota
  • University of Mississippi Medical Center Pediatric Genetics Division
  • University of Nebraska Medical Center
  • University of South Florida
  • University of Utah Graduate Program in Genetic Counseling
  • University of Vermont Health Network
  • USC Norris Comprehensive Cancer Center
  • UT Health | The University of Texas Health Center at Houston
  • UW Health
  • Vanderbilt University Medical Center
  • VHL Alliance
  • Virginia Association of Genetic Counselors (VaAGC)
  • WakeMed Health & Hospitals
  • Watershed DNA, LLC
  • Wayne State University School of Medicine
  • Whittingham Cancer Center
  • Woman's Hospital

 

Organizations can sign the letter by clicking HERE.

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