policy & Publications

NSGC Request for Proposals: Measure-Developer Consultant

Project Title: Genetic Counseling Outcomes Measurement Development

Proposal Deadline: Friday, June 7, 2019

Attachment: Genetic Counseling Outcomes Measurement Development


Genetic Counselors are professionals who have specialized training in medical genetics and counseling to provide personalized interpretation of genetic test results and to guide and support patients with information about: inherited diseases, how family and medical histories potentially affect the possibility of disease occurrence, and determining the most informed choices about genetic tests for a patient.

The first class of master’s degree genetic counselors graduated from Sarah Lawrence College in Bronxville, NY in 1971 and in 1979, the National Society of Genetic Counselors (NSGC) was founded in response to the tremendous growth of the profession. Today, there are more than 5,000 certified genetic counselors employed in various settings, but there is no standardized billing practices for these services.

The value proposition in healthcare is often determined because of the quality of care in accordance with the cost of patient experience (Univ of Utah). Reliable and valid measures are key for evaluating and guiding behavior and holding accountability. In order to achieve the goal of integrating genetics and genomics into the delivery of healthcare to benefit outcomes, NSGC seeks to identify patient-reported outcomes measures (PROMS) to the National Quality Forum (NQF) to receive endorsement. NQF recognition is important to benefit genetic counselor value.

NSGC seeks a level of expertise beyond current membership ability to achieve this goal. NSGC seeks to contract with an individual, likely a health services researcher or measure developer who can assist with developing, testing, endorsing, and implementing these PROMS.


The purpose of this request for proposal is to enter into a contractual agreement with a successful bidder and select a qualified contractor with the following qualifications:

  • Familiarity with NQF Performance Measure Endorsement requirements and process.
  • Experience with Quality Strategies and implementing performance measures in healthcare service-delivery.
  • Familiarity with, or willingness to learn, genetic counseling service-delivery principles.

The qualified contractor should be able to fulfill the following deliverables:

1) Evaluate the Committee’s PROMs and their readiness for NQF endorsement.

2) Outline proposed next steps to achieve full readiness to submit to NQF for endorsement.

3) Develop a proposal to submit to NQF’s endorsement process.

4) Provide technical expertise to achieve NQF endorsement.

5) Provide implementation, data collection, and data storage guidance for each PROM.


  • April 26, 2019: RFP Release Date
  • June 7, 2019: Proposal Due Date
  • July 2019: Notification of Award
  • July-August 2019: Finalize Contract

*Please note that this timeline is subject to change and NSGC reserves the right to terminate the contract at will for any reason.


Email proposals/questions to Molly Giammarco, NSGC’s Senior Manager for Policy & Government Relations. NSGC will accept questions and post them by May 17, 2019.

NSGC Executive Office   |   330 North Wabash Avenue, Suite 2000, Chicago, IL 60611   |   312.321.6834   |   nsgc@nsgc.org
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