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Position Statements

Prenatal Cell-Free DNA Screening

2.1.2025

The National Society of Genetic Counselors believes that all pregnant patients, regardless of aneuploidy risk, should have access to prenatal aneuploidy screening using cell-free DNA (cfDNA).

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Prenatal Testing for Adult-Onset Conditions

10.17.2024

The National Society of Genetic Counselors (NSGC) acknowledges the medical and ethical complexities of  testing for adult-onset conditions during pregnancy. Unless pregnancy or childhood management has the  potential to be impacted, NSGC generally encourages deferring testing. 

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Disability

9.20.2024

The National Society of Genetic Counselors (NSGC) recognizes and celebrates a person’s inherent value including differences in one’s physical, cognitive, or psychiatric functioning.  Individuals should be viewed holistically and not defined by others solely in terms of a single characteristic.  

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Use of Genetic Information in Insurance and Employment Decisions

9.1.2024

The National Society of Genetic Counselors (NSGC) believes that no individual should be discriminated against on the basis of genetic information obtained from genetic testing or family health history. NSGC supports the Genetic Information Nondiscrimination Act of 2008 (GINA)

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Genetic Testing of Children in the Adoption Process

9.1.2024

The National Society of Genetic Counselors (NSGC) supports collecting available health information (including medical, genetic, and family history) for children entering the adoption process.

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Family Health History

6.15.2023

The National Society of Genetic Counselors (NSGC) recommends that patients and their healthcare practitioners jointly collect family health history (FHH) to facilitate comprehensive risk assessment for routine and specialty care

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Human Germline Editing

6.15.2023

The National Society of Genetic Counselors (NSGC) recognizes that new and emerging gene-editing techniques may be a means to prevent, ameliorate, or cure genetic disease. As such, the concerns about risk, or unacceptable uses of gene-editing technologies

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Secondary and Incidental Findings in Genetic Testing

6.15.2023

 The National Society of Genetic Counselors strongly advises pre-test counseling that facilitates informed decision-making, elicits patient preferences regarding secondary and/or incidental findings if possible, and formulates a plan for returning such results before testing occurs. 

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Use of Multi-Gene Panel Tests

6.15.2023

The National Society of Genetic Counselors (NSGC) endorses the use of multi-gene panel tests when clinically warranted and appropriately applied.  These tests can provide a comprehensive and efficient route to identifying the genetic causes of disease.

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Blood Spot Storage and Use

11.15.2022

The National Society of Genetic Counselors supports newborn screening laboratories' storage and use of blood spot samples, and transparent policies to regulate these activities. 

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