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Justice, Equity, Diversity and Inclusion (J.E.D.I.)

NSGC's Statement of Justice, Equity, Diversity and Inclusion (J.E.D.I.)

A guiding principle of the National Society of Genetic Counselors (NSGC) is to integrate genetics and genomics to improve healthcare. As a society, we can only meet this goal by promoting the active participation and leadership of people with diverse identities, perspectives, and backgrounds. Starting within our organization and extending into the larger healthcare system, we seek to empower our members to advocate for themselves, each other, and the diverse people we strive to serve.
View Full J.E.D.I. Statement

NSGC J.E.D.I. Action Plan Task Force

A key recommendation from The Exeter Group’s DEI Assessment for NSGC is the establishment of a J.E.D.I. Action Plan Task Force. This body – made up of 10 to 12 NSGC members and lapsed members - will be a short-term group charged with developing NSGC’s J.E.D.I. Action Plan to shape our collective J.E.D.I. journey towards a more just, equitable, diverse and inclusive organization. The Exeter Group will guide selection and activities for this Task Force.
The J.E.D.I. Action Plan Task Force will have a finite number of members. However, if your nominee or you are not chosen, you may still be able to get involved in workgroups that may be created to move this work forward. If selected for the Task Force, you will be required to participate in foundational training followed by bi-weekly Task Force meetings for 3-4 months.
How will Task Force Members Be Selected?
The J.E.D.I. Task Force will consist of 10 to 12 NSGC members and lapsed members, and a selection group will decide the Task Force membership. The selection group members from NSGC will include different volunteer perspectives as individuals who have been steeped in justice, equity, diversity and inclusion work within NSGC and the genetic counseling profession. The perspectives shown below will serve as the selection group to determine Task Force members: 

  •  J.E.D.I. Committee Representative 
  • Membership Committee Representative 
  • Two members of the NSGC Board of Directors 
  • NSGC Member-at-large 
  • Two members of the Exeter Group 

 This selection group will use a rubric, developed by The Exeter Group for NSGC, to include several considerations for choosing Task Force members. These include a nominee’s: 

  1. lived and/or professional experiences with addressing justice, equity, diversity and inclusion, 
  2. demonstrated commitment to continuous learning and improvement, and, 
  3. diverse perspectives they would bring to the Task Force, when considering the group as a whole. 

Exeter Group’s Organization DEI Assessment of NSGC


  • We anticipate that parts of the report may be hard to read or triggering. This may cause a wide range of feelings and emotions to arise, including defensiveness. Please practice self-care and take breaks as you need. If you sense defensiveness in yourself, please question this and try not to provide feedback from a defensive place.
  • The full Exeter Group report is 300+ pages. It includes quotes and summaries of the member/staff survey findings, focus groups and stakeholder interviews. It reviews NSGC documents, policies and procedures, then closes with recommendations for NSGC. It may take significant time to read the report in its entirety.

Links to Exeter Group Report

View Executive Summary

View Full Report

View a Recorded Presentation of the High-level Findings from the Exeter Group

Open Comment Period Feedback on the Exeter Group’s DEI Assessment

Share Your Photo

Please also consider sharing your photo. As NSGC prepares to launch our J.E.D.I. Action Plan later this year, we are also working to develop appropriate imagery to accompany our J.E.D.I. efforts. For work this consequential, stock photo imagery just didn’t feel right. So, we are asking for your help. We encourage all genetic counselors to consider submitting a photo of themselves through the link above. Help us to create an aspirational mosaic image that aims to include all identities within our community, a core tenet of our J.E.D.I. initiatives. 

Frequently Asked Questions

Click here to view freqently asked questions about NSGC's J.E.D.I. initative.