NSGC Position Statements reflect NSGC's organizational positions on specific public policy topics and guide our communications with policymakers, the media and the general public. Position statements are concrete applications of the Society's Code of Ethics and other official documents and are circulated for member comment prior to adoption. Adoption requires majority vote by the NSGC Board of Directors.
Current Position Statements
Access to Reproductive Healthcare
Advocating for Access to Genetic Counselors
Blood Spot Storage and Use
Clinical Data Sharing
Confronting Racism, Oppression, & Inequity in Genetic & Genomic Medicine
Consumer Initiated Genetic Testing
Disability
Distinguishing Sex and Gender to Reduce Harm
Family Health History
Genetic Testing of Children in the Adoption Process
Genetic Testing of Minors for Adult-Onset Conditions
Human Gene Patenting
Human Germline Editing
Newborn Screening
Prenatal Cell-Free DNA Screening
Prenatal Testing for Adult-Onset Conditions
Raw Data
Regulation of Genetic Testing
Secondary and Incidental Findings in Genetic Testing
Use of Genetic Information in Insurance and Employment Decisions
Use of Multi-Gene Panel Tests
Workplace Wellness Programs
Joint Statements with Other Organizations
ASBrS-NSGC Joint Statement of Medical Societies Regarding Genetic Testing Requirements
Joint Statement in Support of COVID-19 Vaccine Mandates for All Health Care Workers
ASHG/ACMG/NSGC Joint Statement re: Supreme Court Decision on Dobbs v. Jackson Women’s Health Organization
Position Statements Endorsed by NSGC
American Society of Human Genetics Statement Regarding Concepts of “Good Genes” and Human Genetics
Joint Statement in Support of COVID-19 Vaccine Mandates for All Health Care Workers
NSGC Position Statement Process
NSGC members who wish to submit ideas for additional position statements may complete a Position Statement Proposal Form. Proposals will be reviewed by the Advocacy Committee (policy statements) or the Practice Guidance Committee (clinical practice statements). Adoption of a position statement requires a majority vote by the NSGC Board of Directors. If you have additional questions, please contact NSGC Staff Juliet Sullivan, at jsullivan@nsgc.org.
For questions on how the Position Statement Process works, please refer to the Position Statement FAQ for Authors. Additionally, if you have comments or insights on an existing position statement, you can also reach out to Juliet Sullivan, at jsullivan@nsgc.org.
NSGC Public Comments
A list of recent NSGC public comments can be found by following this link to the Public Comments page.
Retired Position Statements
A list of recently retired NSGC position statements can be found on the Retired Position Statements page.