This is a comprehensive resource to support healthcare organizations in building, expanding and sustaining pediatric neurology genetic counseling services. It outlines the clinical, operational and financial value of integrating genetic counselors into pediatric neurology care and provides a structured approach to developing a compelling, data-driven business case.
Business Case Toolkit
The toolkit is organized as a step-by-step guide that walks users through the process of preparing and delivering a strong business case:
- Lay the foundation: Assess organizational needs, gather evidence, identify stakeholders and define a sustainable staffing and service delivery model.
- Develop the case: Translate insights into a structured business case using key sections such as executive summary, background, current state, proposed solution and financial assessment.
- Refine the pitch: Tailor messaging for stakeholders, incorporate testimonials and success stories and present a compelling narrative that highlights both patient impact and organizational value.
This toolkit is intended to be used alongside the accompanying business case template, enabling users to clearly communicate the need for pediatric neurology genetic counseling services and support informed decision-making within their organizations.
Download the Pediatric Neurology Business Case Toolkit
Download the Pediatric Neurology Business Case Template
Additional Resources
Acknowledgements
NSGC thanks the members, subject matter experts, and partners who contributed to the development of this toolkit.
ADVISORY COMMITTEE
- Bruce Cohen, MD
- Julie Cohen, ScM, CGC
- Natalie Ginn, MGC, LCGC
- Jamie Lundy, MS, CGC
- Allison Wheeler, MS, CGC
PARTNER ORGANIZATION REPRESENTATIVES
- Kim Hindery, Executive Director, Child Neurology Foundation
- Ilene Penn Miller, JD, LLM, Executive Director, Rare Epilepsy Network
This toolkit was also developed in collaboration with Rhizome, a public health consulting group, whose team led the research, writing, and design of this resource.
In collaboration with:
Generously funded by:
