POLICY

NSGC has joined in supporting coalition letters addressing additional issues of concern to genetic counselors and patients.  Recent communications are linked below.

CMS Fee Schedule

NSGC Comment on Calendar Year 2026 Medicare Physician Fee Schedule Proposed Rule 

Research

• Ad Hoc Group for Medical Research 119th Congress Welcome Letter (February 2025)
• Reject Cuts to Health and Human Services (April 2025)

Patents

• Oppose the Patent Eligibility Restoration Act (May 2025)

Newborn Screening

• Newborn Screening Coalition Sign-on Letter (May 2025)
• Consideration of Adding Metachromatic Leukodystrophy and Duchenne Muscular Dystrophy to the Recommended Uniform Screening Panel (September 2025)

Testing

• Support the Reinstatement of Clinical Laboratory Improvement Advisory Committee (CLIAC) (June 2025)