NSGC Position Statements reflect NSGC's organizational positions on specific public policy topics and guide our communications with policymakers, the media and the geenral public. Position statements are concrete applications of the Society's Code of Ethics and other official documents and are circulated for member comment prior to adoption. Adoption requires majority vote by the NSGC Board of Directors.
Current Position Statements
ASBrS-NSGC Joint Statement of Medical Societies Regarding Genetic Testing Requirements
At-Home Genetic Testing
Blood Spot Storage and Use
Clinical Data Sharing
Confronting Racism, Oppression, & Inequity in Genetic & Genomic Medicine
Disability
Family Health History
Genetic Counselors in Healthcare Reform
Genetic Testing of Children in the Adoption Process
Genetic Testing of Minors for Adult-Onset Conditions
Human Cloning by Somatic Cell Nuclear Transfer (SCNT) for Reproductive or Therapeutic Purposes
Human Gene Patenting
Human Germline Editing
Newborn Screening
Prenatal Cell-Free DNA Screening
Prenatal Testing for Adult-Onset Conditions
Raw Data
Regulation of Genetic Testing
Reproductive Freedom
Stem Cell Research
Secondary and Incidental Findings in Genetic Testing
Workplace Wellness Programs
Telehealth
Use of Genetic Information in Insurance and Employment Decisions
Use of Multi-Gene Panel Tests
Position Statements Endorsed by NSGC
American Society of Human Genetics Statement Regarding Concepts of “Good Genes” and Human Genetics
Joint Statement in Support of COVID-19 Vaccine Mandates for All Health Care Workers
NSGC Position Statement Process
NSGC position statements are created, reaffirmed, revised, or retired according to the NSGC Position Statement Policy. If you have any questions or comments regarding one or more of the above position statements, or have a suggestion for a new position statement not shown above, please contact Jennifer Trotter, Senior Coordinator, Government Relations, at jtrotter@nsgc.org.
NSGC Public Comments
A list of recent NSGC public comments can be found on the News & Insights page of the NSGC site.