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Access to Genetic Counselor Services Act Organization Support Letter

Our organization supports enactment of the Access to Genetic Counselor Services Act to update Medicare law and improve access to genetic counselors for Medicare beneficiaries.  Genetic counselors are highly trained providers who support patients by providing comprehensive genetic counseling services.  Genetic counselors work as part of the medical team to facilitate communication between Medicare beneficiaries and other providers to manage health issues with a genetic component.

Genetic counselors have advanced training in medical genetics and counseling.  This specialized expertise enables genetic counselors to play a significant role in educating Medicare beneficiaries about the genetic contributions to disease and the for their health – both medical and psychological – and the health of family members. These highly trained professionals enable beneficiaries and other providers to consider which genetic tests may be appropriate, and how to evaluate test results.  In short, genetic counselors empower patients and providers to make informed decisions.

The services of genetic counselors are increasingly important in the era of personalized medicine.  Genetic counseling is particularly helpful for Medicare beneficiaries considering genetic testing for certain conditions affecting the elderly that have a genetic component, such as cancer, cardiovascular disease and neurology. 

Medicare law needs to be updated to provide beneficiaries direct access to the services of genetic counselors to ensure patients receive the counseling they need to make the right decisions about their care.  While Medicare currently covers genetic counseling services, the lack of direct reimbursement for genetic counselors, and arcane “incident to” rules, significantly prevent referrals to these providers.

The Access to Genetic Counselor Services Act takes a measured approach to modernize Medicare to catch up with the innovation of genetics and genomic medicine. The bill would:

  • Improve the ability of other practitioners, such as physicians, to refer patients for genetic counseling to genetic counselors under Medicare Part B.
  • Provide reimbursement to genetic counselors at 85 percent of the physician fee schedule amount.
  • Ensure that other practitioners that currently provide the service can continue to do so if the activities are within their scope of practice.

Enabling broader Medicare beneficiary access to genetic counselors will help ensure appropriate genetic testing, provide critical knowledge to beneficiaries to fully understand test results that are often complex, and further integrate genetic counselors into the healthcare team.  We expect the legislation will enhance team-based care coordination for Medicare beneficiaries, and may also save money for beneficiaries and the Medicare program.

We urge you to support this legislation to modernize and update Medicare for patients.  For additional information, please contact John Richardson, Director of Government Relations, National Society of Genetic Counselors at jrichardson@nsgc.org or 202-367-1239.

Organizations can sign the letter by clicking HERE.

 

Access to Genetic Counselor Services Act Organization Support Letter Signatories

Signatories as of November 2022

  • Access to Expanded Carrier Screening Coalition

  • ACT Genetics
  • Advocate Aurora Health
  • Advocate Genetics
  • ALD Connect
  • Alliance of Dedicated Cancer Centers
  • Allina Health
  • AliveAndKickn
  • ALS Association
  • Ambry Genetics
  • American Board of Genetic Counseling
  • American Cancer Society
  • American Cancer Society Cancer Action Network
  • American Heart Association
  • American Kidney Fund
  • American Neurological Association
  • American Society of Colon and Rectal Surgeons
  • American Society of Human Genetics
  • Amyloidosis Foundation
  • Ann & Robert H. Lurie Children's Hospital of Chicago
  • Arizona Oncology Society
  • Artemis DNA
  • ARUP Laboratories
  • Association for Utah Genetic Counselors
  • Association of Community Cancer Centers
  • Association of Creatine Deficiencies
  • Augustana University
  • AXYS
  • Barth Syndrome Foundation
  • Bay Path University
  • Baylor College of Medicine
  • Baylor College of Medicine Genetic Counseling Program
  • Baystate Medical Center
  • Beth Israel Lahey Health
  • BillionToOne
  • Blueprint Genetics
  • Boise State University
  • Born a Hero Research Foundation
  • Boston Children's Hospital- Neurology Foundation
  • Boston University Master's Program in Genetic Counseling
  • Boston University School of Medicine
  • Brandeis University Master's in Genetic Counseling Program
  • BRCA Advanced 101 & 102 Journal Club
  • BRCAresponder
  • Bridge the Gap - SYNGAP Education and Research Foundation
  • Brigham and Women's Hospital
  • Bright Pink
  • Bryan Medical Center
  • Cancer Advocacy Group of Louisiana
  • Cancer Partners of Nebraska
  • Cancer Support Community
  • CDH International
  • Cedars-Sinai
  • Centogene, US LLC
  • Charcot Marie Tooth Association
  • CHI Memorial Rees Skillern Cancer Institute
  • Child Neurology Foundation
  • Children's Hospital Colorado
  • Children's Hospital of Philadelphia
  • Children's Specialty Group
  • Children's Wisconsin
  • City of Hope National Medical Center
  • Choroideremia Research Foundation
  • Cleveland Clinic
  • Clover Genetics
  • Colon Cancer Coalition
  • Colon Cancer Foundation
  • Color
  • Colorado Cancer Coalition
  • Colorectal Cancer Alliance
  • Columbia University Irving Medical Center
  • CommonSpirit Health
  • Community Hospital
  • Compass Oncology
  • Concert Genetics
  • Cooley Dickinson Health Care
  • Coriell Institute for Medical Research
  • Coriell Life Sciences
  • CPIC
  • Csnk2a1 Foundation
  • Cure CMD
  • Cure Sanfilippo Foundation
  • CureDuchenne
  • Dana-Farber Cancer Institute
  • Dartmouth-Hitchcock Health
  • DCM Foundation
  • Digestive Disease and Surgery Institute, Cleveland Clinic
  • Down Syndrome Association of Central Ohio
  • Down Syndrome Association of Greater Cincinnati
  • Dreamsickle Kids Foundation
  • Duke University
  • Dup15q Alliance
  • Eastern Wisconsin Division of the Hospital Sisters Health System
  • Emory School of Medicine
  • Emory University
  • Empire State Hematology & Oncology Society
  • Epilepsy Foundation
  • EveryLife Foundation for Rare Diseases
  • Exceptional Lives, Inc.
  • Executive Frameworks, Ltd (The Center for Business Models in Healthcare)
  • Family Connection of SC
  • Fight Colorectal Cancer
  • Florida Association of Genetic Counselors
  • FOD Family Support Group
  • FORCE: Facing Our Risk of Cancer Empowered
  • Frederick Health
  • Friedreich's Ataxia Research Alliance
  • FSHD Society
  • Fulgent Genetics
  • Geisinger
  • GeneDx, Inc.
  • GeneMatters
  • Genetic Alliance
  • Genetic Support Foundation
  • Genome Medical
  • GenomeSmart Inc.
  • Genomind
  • George Washington University MFA
  • Georgia Association of Genetic Counselors
  • Gibbs Cancer Center & Research Institute
  • Global Genes
  • Graduate School of Public Health, University of Pittsburgh
  • Greenwood Genetic Center
  • Grey Genetics
  • Gundersen Health System
  • Hawaii Pacific Health
  • Hawaii Society of Clinical Oncology
  • Hawkeye Area Down Syndrome Association (HADSA)
  • HCU Network America
  • HealthPartners
  • Health Wings Therapy
  • Heart Rhythm Society
  • Hearts For Ezra
  • Hennepin Healthcare
  • Hereditary Diffuse Gastric Cancer Advocacy
  • Hereditary Neuropathy Foundation
  • Hospital Sisters Health System EWD
  • Human Genetics Association of New Jersey
  • Huntington's Disease Society of America
  • Huntington's Disease Youth Organization (HDYO)
  • Idaho Society of Clinical Oncology
  • Illinois Society of Genetic Professionals
  • Illumina
  • Indiana Hemophilia and Thrombosis Center
  • Indiana Network of Genetic Counselors
  • Indiana Oncology Society 
  • Indiana State University
  • InformedDNA
  • InherRET, Inc.
  • Innovative Gx Laboratories
  • Intelliger Consulting
  • Intermountain Healthcare- Precision Genomics
  • International Foundation for CDKL5 Research
  • International Network for Fatty Acid Oxidation Research and Management (INFORM)
  • International WAGR Syndrome Association
  • Invitae
  • Iowa Neurological Association
  • Iowa Oncology Society
  • IU Health
  • Jewish Genetic Disease Consortium
  • Johns Hopkins University
  • Jordan's Guardian Angels
  • JScreen
  • Kaiona Counseling
  • KCNQ2 Cure Alliance
  • Keck Graduate Institute
  • Kentucky Society of Clinical Oncology
  • Kennedy Krieger Institute
  • Laboratory Corporation of America Holdings
  • Lipodystrophy United
  • LIU Post GCGP
  • Loma Linda University Health
  • Long Island University
  • Long Island University Post
  • Louisiana Oncology Society
  • Lynch Syndrome International
  • Maine Chapter of the American College of Cardiology
  • Maryland DC Society of Clinical Oncology
  • Maryland Oncology Hematology PA
  • Maryland and DC Society of Genetic Counselors
  • Marshfield Clinic
  • Massachusetts General Hospital
  • M-CM Network
  • Meharry Medical College
  • MedAnswers Inc.
  • Medical College of Wisconsin
  • Medical Oncology Association of Southern California
  • Medneon
  • Memorial Care
  • Memorial Sloan Kettering Cancer Center
  • MercyOne Des Moines Medical Center
  • Metis Genetics, LLC
  • MGH Institute of Health Professions, Genetic Counseling Program
  • Miami Valley Down Syndrome Association
  • Michael's Mission
  • Michigan Association of Genetic Counselors
  • Michigan Medicine
  • Michigan Society for Cardiovascular and Pulmonary Rehabilitation
  • Mickie's Miracles
  • Middlesex Health Cancer Center
  • Minnesota Cancer Alliance
  • Minnesota Genetic Counselors Association
  • Minnesota Society of Clinical Oncology
  • Minnesota Oncology
  • Missouri Cancer Associates
  • Missouri Oncology Society
  • Moffitt Cancer Center
  • Montana Oncology Society
  • My Gene Counsel
  • My Gene Team
  • Myriad Genetics, Inc.
  • Natera
  • National Ataxia Foundation
  • National Comprehensive Cancer Network
  • National Down Syndrome Society
  • National Minority Quality Forum
  • National PKU News
  • Nationwide Children's Hospital
  • Nebraska Hematology-Oncology, PC
  • NERGG, Inc.
  • New England Cancer Specialists
  • New Hope Fertility Center
  • New York Oncology Hematology
  • New York State Genetics Task Force
  • NGLY1.org
  • No Stomach for Cancer
  • North Carolina Medical Genetics Association
  • North Memorial Health
  • Northern New England Clinical Oncology Society
  • Northwestern University
  • Norton & Elaine Sarnoff Center for Jewish Genetics (Jewish United Fund)
  • NothingPink
  • NW Rare Disease Coalition
  • Ochsner Health
  • OHC
  • Ohio Association of Genetic Counselors
  • Ohio Hematology and Oncology Society
  • OhioHealth
  • Oregon Health & Science University
  • ORM Fertility
  • Osteogenesis Imperfecta Foundation
  • Ovarian Cancer Research Alliance
  • Pacific Reproductive Genetic Counseling
  • Parent Project Muscular Dystrophy (PPMD)
  • Parents and Researchers Interested in Smith-Magenis Syndrome (PRISMS)
  • Parkinson's Foundation
  • Partners HealthCare
  • Pathways for Rare and Orphan Studies
  • Penn Medicine Basser Center
  • Penn State Health
  • Pennsylvania Association of Genetic Counselors
  • Perinatal Quality Foundation
  • Personalized Medicine Coalition
  • PharmGKB
  • Phelan-McDermid Syndrome Foundation
  • Pheo Para Alliance
  • Piedmont Healthcare, Inc.
  • PLUGS (Patient-centered Laboratory Utilization Guidance Services)
  • PlumeCare, LLC
  • Prader-Willi Syndrome Association (USA)
  • PreventionGenetics
  • Prisma Health Upstate Cancer Institute
  • Progenity, Inc.
  • Providence St. Joseph Health
  • PXE International
  • Quest Diagnostics
  • Rady Children's Hospital- San Diego
  • Rare New England, Inc.
  • Raymond Foundation, Inc.
  • Regional Obstetrical Consultants
  • Remember The Girls
  • Rocky Mountain Cancer Centers
  • Rocky Mountain Oncology Society
  • Roswell Park Comprehensive Cancer Center
  • Rutgers Cancer Institute of New Jersey
  • Rutgers, the State University of New Jersey
  • Saint Louis University School of Medicine
  • Sanford Health
  • Seattle Children's Hospital
  • Sema4
  • SERGG
  • Sequence46, LLC
  • Sharsheret
  • Sickle Cell Disease Association of America, Inc.
  • Society for Maternal-Fetal Medicine
  • South Carolina Chapter of the American Academy of Pediatrics
  • South Carolina Oncology Society
  • Southern California Genetic Counselors
  • Spectrum Health
  • St. Charles Healthcare
  • St. Luke's Health System
  • Sudden Arrhythmia Death Syndromes (SADS) Foundation
  • Sutter Health
  • Swedish Cancer Institute
  • Synapticure
  • Tennessee Genetic Counselor Association
  • Tennessee Oncology Practice Society
  • Texas Oncology
  • Texas Society of Clinical Oncology
  • Texas Society of Genetic Counselors
  • The Arizona Clinical Oncology Society (TACOS)
  • The Collaborative Group of the Americas on Inherited Gastrointestinal Cancers
  • The Ehlers-Danlos Society
  • The Familial Hypercholesterolemia Foundation
  • The Ohio State University Genetic Counseling Graduate Program
  • The Ohio State University James Cancer Hospital and Solove Institute
  • The University of Arizona Cancer Center at Dignity Health St. Joseph's
  • The University of Pennsylvania Perelman School of Medicine Masters in Genetic Counseling Program
  • The Up Side of Downs of Northeast Ohio
  • The US Oncology Network
  • The US Oncology Network GREAT Program
  • The Women's Hospital
  • ThinkGenetic Foundation
  • Tuberous Sclerosis Alliance
  • UC Davis Comprehensive Cancer Center
  • UCLA Health
  • United Leukodystrophy Foundation
  • UnityPoint Health
  • University of Alabama at Birmingham Genetic Counseling Training Program
  • University of Arkansas for Medical Science Genetic Counseling Graduate Program
  • University of California San Francisco
  • University of Iowa Health Care
  • University of Kansas Cancer Center
  • University of Kentucky Markey Cancer Center
  • University of Maryland Master's in Genetic Counseling Program
  • University of Maryland School of Medicine
  • University of Miami Miller School of Medicine
  • University of Michigan Genetic Counseling Program
  • University of Minnesota
  • University of Mississippi Medical Center Pediatric Genetics Division
  • University of Nebraska Medical Center
  • University of South Florida
  • University of Utah Graduate Program in Genetic Counseling
  • University of Vermont Health Network
  • University of Washington Genetic Counseling Graduate Program
  • US Oncology
  • USC Norris Comprehensive Cancer Center
  • UT Health | The University of Texas Health Center at Houston
  • UW Health
  • Vanderbilt University Medical Center
  • Variantyx
  • VHL Alliance
  • Virginia Association of Genetic Counselors (VaAGC)
  • Virginia Association of Hematologists & Oncologists
  • Virginia Cancer Specialists
  • WakeMed Health & Hospitals
  • Watershed DNA, LLC
  • Wayne State University School of Medicine
  • Weill Cornell Medicine
  • Wentworth-Douglass Hospital
  • Whittingham Cancer Center
  • Wisconsin Association of Hematology and Oncology
  • Wisconsin Genetic Counselors Association
  • Woman's Hospital
  • Wyoming State Oncology Society

 

 

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