Members

Thank you to the Ophthalmology & Hearing Loss SIG, and SIG member Amanda Odell, MS, LGC, for their expertise and help in gathering these resources.

As we celebrate National Deaf History Month, we have compiled a list of resources about the history of deaf culture and working with individuals who are Deaf or Hard of Hearing (HoH).

Pocket Guide for Referrals to Genetics for Hearing Loss

Download the full Pocket Guide for Referrals to Genetics for Hearing Loss

Resources for Individuals or Families of Individuals who are Deaf/Hard of Hearing

• Resource Collection from the Iowa Department of Education, Organized by Age Level

History Resources 

• Events about Deaf History
• Deaf President Now! Documentary directed by Neal Di Marco, releasing May 16 on Apple TV 

Resources for Other Healthcare Providers 

• Recording of Vital Signs: Health Care Access for Deaf, DeafBlind, and Hard of Hearing Patients, from DeafYES!
• Deaf YES! Center for Deaf Empowerment and Recovery 

  Advocating for Deaf/HoH Patients 

• Hands and Voices: a parent-led, professionally-collaborative organization infused with the life experiences of adults who are Deaf or Hard of Hearing, that is dedicated to serving families with children who are D/HH. They do not promote specific communication choices or methodologies. 

Articles from the Journal of Genetic Counseling

• Efforts of Diversity and Inclusion, Cultural Competency, and Equity in the Genetic Counseling Profession: A Snapshot and Reflection 
• Clinical Genetic Counselors' use of People- and Identity-first Language in Regard to Patients' Identification with Disability
• Assessing Deaf Awareness Training: Knowledge and Attitudes of Recent Genetic Counseling Graduates  
• Should Genes for Non-syndromic Hearing Loss be Included in Reproductive Genetic Carrier Screening: Views of People with a Personal or Family Experience of Deafness 
• Expanded Carrier Screening for Inherited Genetic Disease Using Exome and Genome Sequencing