Mission

The Neurogenetics special interest group (SIG) aims to increase the visibility and accessibility of genetic counselors who have both clinical and research expertise in neurogenetics. We propose to do this by educating the public and health care providers about our services and through active networking with peers. Genetic counselors who specialize in neurogenetics have developed skills specific to the testing, management of, and counseling for neurogenetic disorders. Such disorders may include, but are not limited to, autism spectrum disorder, intellectual disability and developmental delay, brain malformation syndromes, brain tumor predisposition syndromes, dementia, epilepsy, hereditary motor neuron diseases, hereditary movement disorders, hereditary neuropathy, leukodystrophy, mitochondrial disorders, muscular dystrophy, myopathy, and/or, stroke.

Membership

Current Members: Access the Neurogenetics SIG community (including the Neurogenetics Discussion Forum and SIG Documents) here.

Join Now: To add this SIG to your NSGC membership, please visit your My NSGC profile. From the Membership tab, select the "Join A SIG" option and select the SIG(s) you would like to join. You will then be able to pay online or print an invoice to mail with a check.

Grants/Award Opportunities

Applications are due by 11:59PM ET on Friday, July 21st, 2023. Proposals must be submitted electronically via Google forms. If you have any questions/comments or need accommodations, please email schulzej@iu.edu or jamie.fong@bcm.edu. Review the SIG grant award page for full details.

Leadership

Bailey Severe
Co-Chair

Tara Jones
Co-Chair