Mission
The Neurogenetics special interest group (SIG) aims to increase the visibility and accessibility of genetic counselors who have both clinical and research expertise in neurogenetics. We propose to do this by educating the public and health care providers about our services and through active networking with peers. Genetic counselors who specialize in neurogenetics have developed skills specific to the testing, management of, and counseling for neurogenetic disorders. Such disorders may include, but are not limited to, autism spectrum disorder, intellectual disability and developmental delay, brain malformation syndromes, brain tumor predisposition syndromes, dementia, epilepsy, hereditary motor neuron diseases, hereditary movement disorders, hereditary neuropathy, leukodystrophy, mitochondrial disorders, muscular dystrophy, myopathy, and/or, stroke.
Membership
Current Members: Access the Neurogenetics SIG community (including the Neurogenetics Discussion Forum and SIG Documents) here.
Funding Opportunities
Research Grants:
The Neurogenetics Special Interest Group (SIG) aims to increase the visibility and accessibility of genetic counselors who have both clinical and research expertise in neurogenetics. The SIG seeks to support projects that fulfill a specific gap in knowledge and resources that would assist current and/or future neurology genetic counselors.
Project topics could include the following, as they pertain to neurologic diagnoses: basic science (e.g. variant interpretation/classification), clinical considerations (e.g. genotype-phenotype correlations), social/behavioral health issues (e.g. knowledge, perception surveys), outcomes and service delivery (e.g. genetic tools and platforms), and genetic education (e.g. development of informational or supportive materials). Projects about professional development or advocacy of and/or the importance of genetic counselors specializing in these conditions will also be considered.
Current NSGC members in good standing and genetic counseling students mentored by an NSGC member are eligible to apply. Neurogenetics SIG membership is not required. The NSGC ID of the applicant or sponsor must be included.
Projects will be considered based on relevancy, innovation, potential impact, persuasiveness of methodology, readability, and need for funds. We expect two annual cycles of grant application windows in the Winter (February) and Summer (July).
Summer cycle is open! Applications are due Thursday, Aug 8th 2024 at 11:59pm. Please refer to the guidelines for application requirements.
If you have any questions/comments or need accommodations, please email Zöe Powis and Tara Jones.
Boards Stipend: $200 each, awarded on first-come, first-served basis. Statement of interest and copy of paid receipt required. NeuroSIG membership is not required.
Neurology Conference Stipend: $200 each, awarded on first-come, first-served basis. Statement of interest and copy of paid receipt required. Must be a NeuroSIG member.
Leadership
Jamie Lundy
Co-Chair
Ashley Cannon
Co-Chair