NSGC Position Statements reflect NSGC's organizational positions on specific public policy topics and guide our communications with policymakers, the media and the general public. Position statements are concrete applications of the Society's Code of Ethics and other official documents and are circulated for member comment prior to adoption. Adoption requires majority vote by the NSGC Board of Directors.
Access to Reproductive Healthcare
Advocating for Access to Genetic Counselors
At-Home Genetic Testing
Blood Spot Storage and Use
Clinical Data Sharing
Confronting Racism, Oppression, & Inequity in Genetic & Genomic Medicine
Disability
Distinguishing Sex and Gender to Reduce Harm
Family Health History
Genetic Testing of Children in the Adoption Process
Genetic Testing of Minors for Adult-Onset Conditions
Human Gene Patenting
Human Germline Editing
Newborn Screening
Prenatal Cell-Free DNA Screening
Prenatal Testing for Adult-Onset Conditions
Raw Data
Regulation of Genetic Testing
Secondary and Incidental Findings in Genetic Testing
Use of Genetic Information in Insurance and Employment Decisions
Use of Multi-Gene Panel Tests
Workplace Wellness Programs
ASBrS-NSGC Joint Statement of Medical Societies Regarding Genetic Testing Requirements
Joint Statement in Support of COVID-19 Vaccine Mandates for All Health Care Workers
ASHG/ACMG/NSGC Joint Statement re: Supreme Court Decision on Dobbs v. Jackson Women’s Health Organization
American Society of Human Genetics Statement Regarding Concepts of “Good Genes” and Human Genetics
NSGC members who wish to submit ideas for additional position statements may complete a Position Statement Proposal Form for the PSC's consideration. Adoption of a position statement requires a majority vote by the NSGC Board of Directors. If you have additional questions, please contact PSC's Staff Liaison Andrew Buckley, at abuckley@nsgc.org.
Additionally, if you have comments or insights on an existing position statement, you can also reach out to Andrew Buckley, at abuckley@nsgc.org.
A list of recent NSGC public comments can be found by following this link to the Public Comments page.
A list of recently retired NSGC position statements can be found on the Retired Position Statements page.