We urge you to support this legislation to modernize and update Medicare for patients. For additional information, please contact Meghan Carey, Executive Director, National Society of Genetic Counselors, at mcarey@nsgc.org or 312-673-4710.
Organizations can endorse the bill via this form
Signatories as of December 15, 2025
- Access to Expanded Carrier Screening Coalition (AECS)
- ACT Genetics
- Advocate Genetics
- Advocate Health
- Alexion, AstraZeneca Rare Disease
- AliveandKick'n
- Alliance for Patient Access
- Alliance of Dedicated Cancer Centers
- ALS Association
- Ambry Genetics
- American Board of Genetic Counseling
- American Cancer Society Cancer Action Network
- American College of Medical Genetics and Genomics
- American Kidney Fund
- American Parkinson Disease Association
- American Society for Reproductive Medicine
- American Society of Human Genetics
- Amyloidosis Foundation
- Arizona Genetics Alliance
- Ascension St. Vincent
- Association for Creatine Deficiencies
- Association of Cancer Care Centers (ACCC)
- Avera Health
- Avery's Hope
- Barth Syndrome Foundation
- Baylor College of Medicine Genetic Counseling Program
- Baylor Genetics
- BillionToOne, Inc. (BillionToOne Laboratory)
- Born a Hero Research Foundation
- Boston Children's Hospital Department of Laboratory Medicine
- Boston Children's Hospital Department of Neurology
- Boston Children's Hospital Department of Pediatrics
- Boston University (BU) Chobanian & Avedisian School of Medicine
- Brigham and Women's Hospital
- Cancer Advocacy Group of Louisiana (CAGLA)
- Cancer Partners of Nebraska
- Cancer Resource Foundation, INC; DBA Cancer1Source
- Case Western Reserve University School of Medicine
- CDH International
- Chicago Genetic Consultants
- Child Neurology Foundation
- Children's Healthcare of Atlanta Cardiology
- Children's Hospital Colorado
- Children's Hospital of Philadelphia
- Children's Wisconsin
- Choroideremia Research Foundation
- City of Hope National Medical Center
- Coalition to Cure CHD2
- Colon Cancer Alliance for Research & Education for Lynch Syndrome (CCARE Lynch Syndrome)
- Colon Cancer Coalition
- Columbia University Irving Medical Center
- COMBINEDBrain, Inc.
- Corewell Health
- CSNK2A1 Foundation
- CSNK2B Foundation
- Cure CMD
- Cure GABA-A
- Cure GM1 Foundation
- Cure Sanfilippo Foundation
- Cure VCP Disease
- CureGRIN Foundation
- CureSHANK
- Cystic Fibrosis Foundation
- DCM Foundation
- Denver Health & Hospital Authority
- DMC University Laboratories
- Down Syndrome Association of Central Ohio
- Dup15q Alliance
- Elevate DD
- Emory School of Medicine
- Epilepsy Foundation of America
- EveryGene
- EveryLife Foundation for Rare Diseases
- Exact Sciences
- Exceptional Lives, Inc.
- FamilieSCN2A Foundation
- Family Connection of South Carolina
- Family Heart Foundation
- Fight Colorectal Cancer
- Flok Health
- Florida Association of Genetic Counselors (FLAGC)
- FOD (Fatty Oxidation Disorders) Family Support Group
- FORCE: Facing Our Risk of Cancer Empowered
- Foundation for Angelman Syndrome Therapeutics
- Frederick Health
- Fulgent Genetics
- GABA-A Alliance
- GeneDx, Inc.
- Genetic Support Foundation
- Genome Creative, LLC
- Genome Medical
- Georgia Center for Oncology Research and Education (CORE)
- GeriatRx
- Global Genes: Allies in Rare Disease
- Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN)
- GNB1 Advocacy Group, Inc.
- Good Samaritian Hospital; Catholic Health
- Greenwood Genetic Center
- Grey Genetics
- Hannah's Hope Fund for GAN
- Hawaii Society of Clinical Oncology
- HCU Network America
- HD Genetics
- HealthyGene
- Helix, Inc.
- Hereditary Neuropathy Foundation
- Human Genetics Association of New Jersey
- Immune Deficiency Foundation
- Indiana Oncology Society
- International Cancer Advocacy Network (ICAN)
- International Foundation for CDKL5 Research
- Invision Sally Jobe/Radiology Imaging Associates
- Iowa Oncology Society
- IVI RMA America
- Jacobs School of Medicine and Biomedical Sciences, University at Buffalo
- Johns Hopkins Medicine
- JScreen
- Kaiona Counseling
- KARES Foundation
- KCNQ2 Cure Alliance
- Kennedy Krieger Institute
- Labcorp
- Les Turner ALS Foundation
- Li Fraumeni Syndrome LFSA Association
- Lipodystrophy United
- Long Island University Post Genetic Counseling Graduate Program
- Lynch Syndrome Awareness and Education
- Maqnchester Direct Family Practice
- Mass General Brigham
- Massachusetts General Hospital Institute of Health Professions, Genetic Counseling Program
- M-CM Network
- Medical Oncology Association of Southern California (MOASC)
- Metis Genetics
- Middlesex Health Cancer Center
- Mirvie, Inc.
- Mississippi Metabolics Foundation
- MKGenetix
- Monica Weldon Consulting, LLC
- Montana State Oncology Society
- Muscular Dystrophy Association
- My Gene Counsel
- MyOme
- MyOme
- Myriad Genetics, Inc.
- Natera, Inc
- National Ataxia Foundation
- National Comprehensive Cancer Network
- National Down Syndrome Society
- National Organization for Rare Disorders
- National Society of Genetic Counselors
- National Society of Genetic Counselors
- NBIA Disorders Association
- NERGG, Inc. (New England Regional Genetics Group)
- Nest Genomics
- New England Cancer Specialists
- No Stomach For Cancer
- North Carolina Medical Genetics Association
- Northern California Coalition of Genetic Counselors (NCCGC)
- Northern New England Clinical Oncology Society
- Northwestern University Graduate Program in Genetic Counseling
- NW Rare Disease Coalition
- Ochsner Health
- Ohio Association of Genetic Counselors
- Ovarian Cancer Research Alliance
- Ovum Health
- Parent Project Muscular Dystrophy (PPMD)
- Parents and Researchers Interested in Smith-Magenis Syndrome (PRISMS)
- Parkinson's Foundation
- Pathways for Rare and Orphan Solutions
- Penn Medicine Basser Center
- Penn State Health
- Pennsylvania Society of Oncology and Hematology
- Personalized Medicine Coalition
- Prader-Willi Syndrome Association (PWSA|USA)
- Project Alive
- Propionic Acidemia Foundation
- PTEN Hamartoma Tumor Syndrome Foundation
- PXE International/Genetic Allliance
- Quest Diagnostics
- Rady Children's Health- San Diego
- Rare Epilepsy Network (REN)
- RARE-X
- RASopathies Network
- Relevant Genetics, LLC
- Remember The Girls
- Rocket Pharma
- Saint Louis University School of Medicine
- Sarah Lawerence College
- SATB2 Gene Foundation
- Sharsheret, Inc.; The Jewish Breast & Ovarian Cancer Community
- Skraban-Deardorff Syndrome Foundation
- Southeastern Regional Genetics Group (SERGG)
- Southern California Genetic Counselors (SCGC)
- STXBP1 Foundation
- Sudden Arrhythmia Death Syndromes (SADS) Foundation
- Susan G. Komen
- Sutter Health
- Tandem Genetics
- The Association for Frontotemporal Degeneration (AFTD)
- The Collaborative Group of the Americas on Inherited Gastrointestinal Cancer (CGA-IGC)
- The Global Foundation for Peroxisomal Disorders
- The John Ritter Foundation for Aortic Health
- The LCC Foundation
- The Michael J Fox Foundation for Parkinson's Research
- The Ohio State University Genetic Counseling Graduate Program
- The Ohio State University Wexner Medical Center
- The RUNX1 Research Program
- TSC Alliance
- Undiagnosed Diseases Network Foundation
- United Leukodystrophy Foundation
- United MSD Foundation
- UnityPoint Health
- University of Arkansas for Medical Sciences Genetic Counseling Graduate Program
- University of California San Francisco (UCSF Health)
- University of Colorado Anschutz Medical Campus
- University of Iowa
- University of Kansas Genetic Couneling Project
- University of Maryland Master's in Genetic Counseling Program
- University of Maryland School of Medicine
- University of Mississippi Medical Center Department of Pediatrics
- University of Pittsburgh Medical Center (UPMC) Hillman Cancer Center
- University of South Carolina Genetic Counseling Program
- University of South Florida
- University of Vermont Health Network
- USC Norris Comprehensive Cancer Center
- Usher 1F Collaborative
- UT Health | The University of Texas Health Center at Houston
- Vanderbilt University Medical Center
- Virginia Chapter of the American College of Cardiology
- Virginia Oncology Associates
- Watershed DNA
- Wentworth-Douglass Hospital
- Xavier University of Louisiana
- xCures