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POLICY

Position Statements

Prenatal Testing for Adult-Onset Conditions

10.17.2024

The National Society of Genetic Counselors (NSGC) acknowledges the medical and ethical complexities of  testing for adult-onset conditions during pregnancy. Unless pregnancy or childhood management has the  potential to be impacted, NSGC generally encourages deferring testing. 

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Disability

9.20.2024

The National Society of Genetic Counselors (NSGC) recognizes and celebrates a person’s inherent value including differences in one’s physical, cognitive, or psychiatric functioning.  Individuals should be viewed holistically and not defined by others solely in terms of a single characteristic.  

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Family Health History

6.15.2023

The National Society of Genetic Counselors (NSGC) recommends that patients and their healthcare practitioners jointly collect family health history (FHH) to facilitate comprehensive risk assessment for routine and specialty care

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Human Germline Editing

6.15.2023

The National Society of Genetic Counselors (NSGC) recognizes that new and emerging gene-editing techniques may be a means to prevent, ameliorate, or cure genetic disease. As such, the concerns about risk, or unacceptable uses of gene-editing technologies

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Secondary and Incidental Findings in Genetic Testing

6.15.2023

 The National Society of Genetic Counselors strongly advises pre-test counseling that facilitates informed decision-making, elicits patient preferences regarding secondary and/or incidental findings if possible, and formulates a plan for returning such results before testing occurs. 

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Use of Multi-Gene Panel Tests

6.15.2023

The National Society of Genetic Counselors (NSGC) endorses the use of multi-gene panel tests when clinically warranted and appropriately applied.  These tests can provide a comprehensive and efficient route to identifying the genetic causes of disease.

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Regulation of Genetic Testing

11.15.2022

The National Society of Genetic Counselors supports regulation of genetic testing for health-related conditions and hereditary diseases for clinical use.

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Advocating for Access to Genetic Counselors

11.15.2022

The National Society of Genetic Counselors (NSGC) advocates for policies that promote appropriate patient access to board-certified genetic counselors as part of a high quality, cost-effective healthcare model.

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Blood Spot Storage and Use

11.15.2022

The National Society of Genetic Counselors supports newborn screening laboratories' storage and use of blood spot samples, and transparent policies to regulate these activities. 

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Access to Reproductive Healthcare

6.24.2022

NSGC supports the ability of genetic counselors to communicate accurate, unbiased information about the complete range of reproductive options.

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